29 Οκτ 2024
Insights Shared in Psoriasis Magazine: An Interview with Psoriasis Patienten Nederland
We are pleased to share that we were interviewed by Psoriasis Patients Netherlands (https://psoriasispatientennederland.nl/) and featured in their Psoriasis Magazine. This dedicated volunteer organisation advocates for over 300,000 people in the Netherlands affected by psoriasis and psoriatic arthritis.
Supporting Patients
Psoriasis Patients Netherlands provides clear, unbiased information on managing chronic conditions and serves as a vital link between patients, healthcare providers, and the latest research. Their focus is on patient support, offering resources like their magazine, social media, and direct support channels, creating an invaluable network for those navigating these challenging conditions.
Digital Health Innovation
The Erasmus MC in Rotterdam, through the iPROLEPSIS Consortium, is developing an app to help patients with psoriatic arthritis monitor their condition using digital health tools. Over 600 patients across four countries will use the app and smartwatches to track their heart rate, activity, and symptoms daily, along with periodic video analyses and healthcare visits.
Key Research Areas
The key research areas include exploring the roles of genetics, gut microbiome, and lifestyle factors. Collaborations with organizations like HPOS will soon allow individuals with psoriasis to contribute their data, supporting predictive models for earlier diagnosis.
Empowering Patients Through Partnership
The Erasmus MC’s iPROLEPSIS study is not just about technological development; it is driven by the stories of patient partners like Elaine and Wendy. Their lived experience with psoriatic arthritis informs our work, ensuring that the tools we develop support their needs and enhance their well-being. With patient partners at the core of the iPROLEPSIS initiative, we are creating a future where digital tools empower psoriatic arthritis patients.
