Learning Hub
Explore resources to help you understand and manage psoriatic arthritis.
Search
151 results found with an empty search
- How is psoriatic arthritis treated? Self-care and lifestyle | iPROLEPSIS
Learning Hub Explore resources to help you understand and manage psoriatic arthritis. Learning hub Key Facts Handbook News Feed Quizzes Search How is psoriatic arthritis treated? Self-care and lifestyle See related Handbook section PREVIOUS NEXT
- Innovating Psoriatic Arthritis Care with iPROLEPSIS | iPROLEPSIS
< BACK Innovating Psoriatic Arthritis Care with iPROLEPSIS Oct 29, 2024 Insights Shared in Psoriasis Magazine: An Interview with Psoriasis Patienten Nederland We are pleased to share that we were interviewed by Psoriasis Patients Netherlands ( https://psoriasispatientennederland.nl/ ) and featured in their Psoriasis Magazine . This dedicated volunteer organisation advocates for over 300,000 people in the Netherlands affected by psoriasis and psoriatic arthritis. Supporting Patients Psoriasis Patients Netherlands provides clear, unbiased information on managing chronic conditions and serves as a vital link between patients, healthcare providers, and the latest research. Their focus is on patient support, offering resources like their magazine, social media, and direct support channels, creating an invaluable network for those navigating these challenging conditions. Digital Health Innovation The Erasmus MC in Rotterdam, through the iPROLEPSIS Consortium , is developing an app to help patients with psoriatic arthritis monitor their condition using digital health tools. Over 600 patients across four countries will use the app and smartwatches to track their heart rate, activity, and symptoms daily, along with periodic video analyses and healthcare visits. Key Research Areas The key research areas include exploring the roles of genetics, gut microbiome, and lifestyle factors. Collaborations with organizations like HPOS will soon allow individuals with psoriasis to contribute their data, supporting predictive models for earlier diagnosis. Empowering Patients Through Partnership The Erasmus MC’s iPROLEPSIS study is not just about technological development; it is driven by the stories of patient partners like Elaine and Wendy. Their lived experience with psoriatic arthritis informs our work, ensuring that the tools we develop support their needs and enhance their well-being. With patient partners at the core of the iPROLEPSIS initiative, we are creating a future where digital tools empower psoriatic arthritis patients. 1/1 PREVIOUS NEXT
- What is psoriatic arthritis? | iPROLEPSIS
Learning Hub Explore resources to help you understand and manage psoriatic arthritis. Learning hub Key Facts Handbook News Feed Quizzes Search What is psoriatic arthritis? See related Handbook section PREVIOUS NEXT
- ChatGPT in Nutrition: Trends, Challenges and Future Directions | iPROLEPSIS
< BACK ChatGPT in Nutrition: Trends, Challenges and Future Directions Jun 27, 2024 Exploring the Role of AI in Shaping the Future of Personalised Nutrition Introducing our latest iPROLEPSIS publication, "ChatGPT in Nutrition: Trends, Challenges, and Future Directions" , presented at PETRA 2024. This study explores the evolving role of AI in personalized nutrition. Abstract: A healthy and balanced diet is of paramount importance to the physical and psychological well-being of an individual, since unhealthy dietary choices have been linked with the occurrence of non-communicable diseases. Recent technological advances has led to the development of large language models, such as ChatGPT that has been widely adopted as a convenient tool for creating meal plans and obtaining nutritional information. This work aims to provide a thorough review of the scientific work performed so far regarding the use of ChatGPT in the field of nutrition. In this survey, the advantages and limitations of ChatGPT in different aspects of nutrition are pinpointed, while the challenges from the use of ChatGPT in nutrition are identified and discussed. Future research directions are also proposed to assist researchers towards the development of more effective nutrition recommendation systems. Read the full publication: https://zenodo.org/records/13142880 ChatGPT in Nutrition .pdf Download PDF • 620KB 1/1 PREVIOUS NEXT
- How will psoriatic arthritis affect me? Emotional wellbeing | iPROLEPSIS
Learning Hub Explore resources to help you understand and manage psoriatic arthritis. Learning hub Key Facts Handbook News Feed Quizzes Search How will psoriatic arthritis affect me? Emotional wellbeing See related Handbook section PREVIOUS NEXT
- iPROLEPSIS joins the YouTube channel | iPROLEPSIS
< BACK iPROLEPSIS joins the YouTube channel Jan 23, 2024 Join Our Digital Journey – Follow iPROLEPSIS on YouTube iPROLEPSIS has officially joined the YouTube community . Follow our YouTube Channel: iPROLEPSIS - YouTube . Join us as we delve into novel digital solutions for psoriatic arthritis. Stay tuned for informative and engaging content! transparent-glass-bubble-with-youtube-logo-inside-it.jpg transparent-glass-bubble-with-youtube-logo-inside-it.jpg 1/1 PREVIOUS NEXT
- iPROLEPSIS Games Presented at the Pitch Competition during PhD Open Days | iPROLEPSIS
< BACK iPROLEPSIS Games Presented at the Pitch Competition during PhD Open Days Nov 7, 2024 Showcasing iPROLEPSIS Games at the PhD Open Days Pitch Competition On November 5th, Bárbara Ramalho from FMH/IST-ULisboa had the opportunity to present the iPROLEPSIS Games at the Pitch Competition during the PhD Open Days event at the Técnico Innovation Center . In her pitch, Bárbara highlighted the role of serious games in the iPROLEPSIS project, which aims to improve the care and management of psoriatic arthritis (PsA) through a personalised, game-based digital ecosystem. The PhD Open Days gave over a thousand students the chance to connect, network, and showcase their research to the academic community, industry professionals, and alumni. The Pitch Competition was a great opportunity for researchers to present their work and meet potential collaborators. 1/5 PREVIOUS NEXT
- iPROLEPSIS presented to Eli Lilly in the Netherlands | iPROLEPSIS
< BACK iPROLEPSIS presented to Eli Lilly in the Netherlands Nov 8, 2023 Presentation to Eli Lilly introduces iPROLEPSIS as the next step in personalised psoriatic arthritis care On the 7th of November 2023, Ilja Tchetverikov from CICERO Rheumatology presented the results and prospects of the DEPAR cohort and introduced iPROLEPSIS clinical studies to the representatives of Eli Lilly company in the Netherlands. DEPAR, Dutch south-west Psoriatic Arthritis Registry, is a registry set up by Cicero Rheumatology, a partnership of rheumatologists working in 15 different hospitals in the south-west of the Netherlands. DEPAR, with the participation of well over 900 patients, supports rheumatologists to gain insight into the treatment and course of psoriatic arthritis. The presentation highlighted iPROLEPSIS as a logical next step in the further development of DEPAR, emphasising the project’s vision and aim to explain psoriatic arthritis inflammation through multi-source data analysis, guiding to a novel personalised digital care ecosystem. Slide1.JPG Slide2.JPG Slide6.JPG Slide1.JPG 1/6 PREVIOUS NEXT
- iPROLEPSIS at Health Data Summit 2025 | iPROLEPSIS
< BACK iPROLEPSIS at Health Data Summit 2025 Feb 12, 2025 Trustworthy AI in Digital Health iPROLEPSIS is excited to join AI-PROGNOSIS and other Horizon Europe research and innovation projects - T RUSTroke, SmartCHANGE, and STRATIFYHF - at the Health Data Summit 2025 in Brussels. Together, these projects will focus on practical approaches for building trustworthy AI-enabled digital health tools aimed at assessing disease risk and progression. During the workshop titled " Trustworthy AI in Digital Health: From Guidelines to Practice" on 19-20 March 2025, iPROLEPSIS will join experts in discussing the importance of ensuring data quality, addressing bias, and applying ethical AI principles in healthcare solutions. The workshop will cover frameworks, methods, and techniques across the AI system development lifecycle, emphasising how to build AI tools that are robust, fair, transparent, and protect privacy. Key discussion topics include: Ensuring data quality and mitigating bias in AI-driven healthcare Applying ethical AI principles throughout AI system development Balancing fairness, privacy, transparency, and robustness The session will be an opportunity for iPROLEPSIS and its partners to contribute to advancing the responsible use of AI in healthcare and discuss solutions for improving digital health tools. Event details: Health Data Summit 2025 Programme details: Summit Programme 1/1 PREVIOUS NEXT
- iPROLEPSIS Lifestyle Recommendation Engine Co-Creation Insights | iPROLEPSIS
< BACK iPROLEPSIS Lifestyle Recommendation Engine Co-Creation Insights Nov 12, 2024 User-Centered Development of the iPROLEPSIS Lifestyle Recommendation Engine The iPROLEPSIS project recently hosted its first co-creation session focused on refining the Lifestyle Recommendation Engine for individuals with Psoriatic Arthritis (PsA). This online session brought together a diverse, multidisciplinary group of 20 participants, including patient research partners from Portugal, The Netherlands, the UK, and Greece, along with clinicians, researchers, and developers from the iPROLEPSIS consortium. During the session, participants explored mockups and initial prototypes for nutrition and physical activity recommendations, offering valuable insights that guide iterative development towards a more user-centred and impactful design for the iPROLEPSIS Lifestyle Recommendation Engine. Purpose and Approach This collaborative effort aimed to improve the iPROLEPSIS Lifestyle Recommendation Engine, ensuring that it is user-centred and impactful. The session included detailed presentations of mockups and prototypes, followed by discussions where participants shared their perspectives and feedback on the nutrition and physical activity guidelines. Key Findings Strengths Clear Presentation: Participants appreciated the clarity of the nutrition and exercise recommendations, especially the structured breakdown of weekly meal plans and exercise intensity levels, which allowed for easy tailoring to user capabilities. User-Friendly Exercise Recommendations: Including exercise intensity was highly valued, helping users to select routines suitable to their abilities. Areas for Improvement Portion Sizes and Meal Timings : Participants recommended clearer definitions for portion sizes and specific guidance on meal timings to better support daily routines. Household Measurements : To improve accessibility, participants suggested including household measurements for ingredients, making recipes easier to follow. Cultural and Dietary Preferences : The inclusion of various cuisines, dietary options (e.g., vegetarian, gluten-free), and meal preparation cost considerations were recommended. Suggestions for Future Development Customizable Meal Plans : Participants supported options for users to create or choose from curated meal plans, along with suggested recipes for variety and personalisation. Enhanced Accessibility in Physical Activity : The need for exercise recommendations catering to different mobility levels was emphasised, with suggestions for low-intensity options for users with limited physical capacity. Safety Information and Usability : Feedback supported the inclusion of safety information for users with joint conditions and clarity enhancements in the app's design, particularly in colour-coding for specific goals. Interactive Goal Setting : Participants supported the inclusion of features for progress tracking and personalised goal setting to motivate users and enhance engagement. Participant Feedback and Satisfaction Participants expressed high satisfaction, particularly with the session’s structure and the collaborative nature of the discussion. Many appreciated the online format, which improved interaction. Looking Ahead The valuable feedback gathered will guide further development, ensuring the Lifestyle Recommendation Engine meets diverse user needs. Future iterations will aim to incorporate additional user-friendly features, making it easier for individuals with PsA to access personalised nutrition and physical activity recommendations tailored to their unique health goals and lifestyle preferences. 1/3 PREVIOUS NEXT
- iPROLEPSIS Plenary meeting | iPROLEPSIS
< BACK iPROLEPSIS Plenary meeting Jun 22, 2023 iPROLEPSIS Consortium Partners Meet in Lisbon to Plan Next Steps The iPROLEPSIS consortium partners gathered in Lisbon, Portugal on June 20-21 for the 2nd Plenary meeting to review the progress and achievements of the project's work packages and plan the next steps. Over the course of two days, the consortium partners engaged in three productive workshops, each focusing on key aspects of the iPROLEPSIS project: Data Collection and Digital Biomarkers: The first workshop delved into the vital task of data collection and the development of digital biomarkers. Attendees discussed the identification of sensor and user data to be collected, including accelerometer/gyroscope data. Additionally, they explored algorithms for identifying inflammation drivers and defined user profiles to enhance personalized healthcare. System Architecture and Cloud Back-end: The second workshop centered around system architecture. The consortium partners discussed the key components of the system, including the orchestrator, and addressed critical aspects such as data management infrastructure and monitoring of app performance issues. miPROLEPSIS App and Serious Games: The third workshop involved a dynamic co-creation session, bringing together clinicians, patients, researchers, and developers. Focusing on the miPROLEPSIS app and serious games, participants explored various areas such as system architecture, key components, data management infrastructure, and app performance monitoring. The adoption of the "Crazy 8s" technique allowed for the rapid generation of a diverse range of ideas. During the third workshop patient representatives joined the session. Their valuable input and perspectives are crucial for understanding the specific needs and requirements of those who will benefit from our iPROLEPSIS project. By actively involving patient representatives, we can ensure that our solutions are truly patient-centric and tailored to their experiences and challenges. The iPROLEPSIS consortium is excited about the progress made during this meeting and is now equipped with a comprehensive plan for the next steps of the project. 3-1.jpg 3-1.jpg 1/1 PREVIOUS NEXT
- "The Kite" Breathing Serious Game: Agile Co-Design for Psoriatic Arthritis | iPROLEPSIS
< BACK "The Kite" Breathing Serious Game: Agile Co-Design for Psoriatic Arthritis Jul 31, 2024 Enhancing PsA Management through Innovative Breathing Exercises and Game-Based Therapy Latest research initiative under the iPROLEPSIS project: “The Kite” Breathing Serious Game: Agile Co-Design for Psoriatic Arthritis presented at IEEE MELECON 2024. This study is part of a broader effort to develop and validate innovative digital biomarkers for managing Psoriatic Arthritis (PsA) through the Artificial Intelligence-Personalised Game Suite (AI-PGS). Abstract: Serious Games (SGs) have the potential to provide clinical care and enhance patients’ quality of life, while incorporating an element of entertainment. As part of the iPROLEPSIS Horizon Europe project, we introduce two Sensorimotor Art games designed as SGs to assist Psoriatic Arthritis (PsA) patients in managing their symptoms. These SGs provide a platform for self-expression and pain relief through engaging in rhythmic puzzle activities. The co-design process for the proposed Sensorimotor Art games followed an agile methodology, involving 14 experts (including clinicians, researchers, and game developers), to gather feedback on game requirements, storyboards, and mechanics. From the thematic analysis of the transcribed discussion, four main themes emerged, namely: Clinical value (Theme 1), Motor skills and adaptation (Theme 2), Creative engagement (Theme 3), and Feedback and future directions (Theme 4). Clinical value underlines the therapeutic benefits of Sensorimotor Art games for pain distraction and emotional well-being. Motor skills and adaptation focus on hand/finger use and adapting games for older patients. Creative engagement emphasizes fostering creativity, a positive environment, and goal achievement. Finally, feedback and future directions highlight the importance of continuous feedback and occupational therapists’ involvement in coming sessions. The development of Sensorimotor Art games lays the groundwork for digital interventions to alleviate psychological distress and improve fine motor symptoms in PsA patients. At the same time, these SGs can also provide insights to healthcare providers and policymakers for developing future digital solutions tailored to PsA patients. Read the full publication: https://zenodo.org/records/13141465 IEEE_MELECON_2024 .pdf Download PDF • 1.33MB 1/1 PREVIOUS NEXT